April 20, 2019

I read a blog that offered a road map to a "lucky-life". The suggestions were simple but, not so easy to follow; leave room for randomness, see the positive, live in the moment, be of service to others, accept failure, create luck through hard work, resign from judgeme...

November 20, 2017

GRIT. The sound and meaning of the word- GRIT is a perfect metaphor for a person living  well -with ALS.

It is an invader or substance that enters the shell of the developing oyster which chemically changes overtime into an iridescent gem- a precious pearl. We have...

October 24, 2017

Compassion is defined as a strong desire to alleviate suffering and a feeling of deep sympathy for another person. During the clinical trials, we find compassion each month on the 6th floor at the ALS clinic when Gary receives, "the monkey juice"  via a lumbar puncture...

October 24, 2017

ALS is no ordinary, epic, fairy-tale dragon. It can consume the essence and spirit of anyone who gets too close. Unrelenting, formidable and it will take-no-prisoners. We keep the dragon at a distance with the armor and swords of daily rituals, routines and often humor...

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